Does anybody know anyone with HLHS?
Question: HLHS is Hypoplastic Left Heart Syndrome. My daughter has it, and I was just wondering how many other people may have it. If you know anybody, just let me know. Also, let me know how they are doing. Thanks.
Answers:
I'm sorry to hear about your daughters condition and I hope everything works out well.
These two websites may help you contact other people in a similar situation.
http://www.lhm.org.uk/
http://www.cafamily.org.uk/Direct/h59.html
Good luck !
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